Resources & Publications

Publications

A collection of publications shared over time amongst PALPRAC community members.

South African publications

Renal care

Radically Rethinking Renal Supportive and Palliative Care in South Africa. Kidney Int Rep. 2020 Dec 7;6(3):568-573 Read paper
Renal Palliative and Supportive Care in South Africa – a Consensus Statement. African Journal of Nephrology 23 (1), 86-107. Read paper

Position paper on undergraduate Palliative Medicine education for doctors in South Africa. Afr J Prm Health Care Fam Med. 2022;14(1), a3202.Read paper
The influence of context on the implementation of integrated palliative care in an academic teaching hospital in South Africa. Palliative Care and Social Practice. 2024;18. Read paper

A Delphi study to guide the development of a clinical indicator tool for palliative care in South Africa. African Journal of Primary Health Care & Family Medicine | Vol 14, No 1 | a3351. Read paper
SA Supportive and Palliative Care Indicators Tool (SPICTTM-SA) Download here

Exploring the experiences of healthcare professionals in South Africa and Uganda around communicating with children about life-threatening conditions: a workshop-based qualitative study to inform the adaptation of communication frameworks for use in these settings. BMJ Open. 2023 Jan 27;13(1):e064741. Read paper
Breaking bad news in a cross-language context: A qualitative study to develop a set of culturally and linguistically appropriate phrases and techniques with Zulu speaking cancer patients. Patient Educ Couns. 2022 Jul;105(7):2081-2088. Read paper
Illness Understanding and End-of-Life Care Communication and Preferences for Patients With Advanced Cancer in South Africa. J Glob Oncol. 2018 Sep;4:1-9. Read paper
De Swardt, M., Krause, R., & Jenkins, L. (2024). How to approach patients and families at the end of life. South African Family Practice, 66(1), 4 pages. Read paper

A hospital-based palliative care service for patients with advanced organ failure in sub-Saharan Africa reduces admissions and increases home death rates. J Pain Symptom Manage. 2014 Apr;47(4):786-92. Read paper
The profile and cost of end-of-life care in South Africa – the medical schemes’ experience. Master Thesis. Botha, P. 2020. University of Cape Town. Read paper

A Prospective Cohort Study of Factors Associated With Place of Death Among Patients With Late-Stage Cancer in Southern Africa, Journal of Pain and Symptom Management, Volume 57, Issue 5, 2019, Pages 923-932. Read paper
Informal Caregiver Challenges for Advanced Cancer Patients During End-of-Life Care in Johannesburg, South Africa and Distinctions Based on Place of Death. J Pain Symptom Manage. 2018 Jul;56(1):98-106. Read paper

Doctoral and Master theses

Click here

International publications

Dementia care

White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care. Palliat Med. 2014 Mar;28(3):197-209. Read paper

Dying with dementia-how can we improve the care and support of patients and their families. Ann Palliat Med. 2017 Oct;6(4):306-309. Read paper

Locally relevant resources and information

Nutrition in palliative care PMB

Nutrition in palliative care PMB
Medical scheme and MCO links

Defining Prescribed Minimum Benefits for Nutritional support in palliative care in South Africa.

Is Your Patient Eligible for Palliative Care?

Provider blog

Palliative Care Training

PALPRAC Advance Care Planning

Resources and Publications

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