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Resources & Publications

A collection of publications shared over time amongst PALPRAC community members.

South African publications

Renal care
  • Radically Rethinking Renal Supportive and Palliative Care in South Africa. Kidney Int Rep. 2020 Dec 7;6(3):568-573 Read paper
  • Renal Palliative and Supportive Care in South Africa – a Consensus Statement. African Journal of Nephrology 23 (1), 86-107. Read paper
Palliative care education in South Africa
  • Position paper on undergraduate Palliative Medicine education for doctors in South Africa. Afr J Prm Health Care Fam Med. 2022;14(1), a3202.Read paper
  • The influence of context on the implementation of integrated palliative care in an academic teaching hospital in South Africa. Palliative Care and Social Practice. 2024;18. Read paper
National Department of Health Palliative care policy
Pain management
  • PainSA: Guide to the treatment of cancer pain in South Africa. Download here
  • CANSA booklets for patients to help manage cancer pain in the home. Download here
Identifying patient with palliative care needs
  • A Delphi study to guide the development of a clinical indicator tool for palliative care in South Africa. African Journal of Primary Health Care & Family Medicine | Vol 14, No 1 | a3351. Read paper
  • SA Supportive and Palliative Care Indicators Tool (SPICTTM-SA) Download here
Communication
  • Exploring the experiences of healthcare professionals in South Africa and Uganda around communicating with children about life-threatening conditions: a workshop-based qualitative study to inform the adaptation of communication frameworks for use in these settings. BMJ Open. 2023 Jan 27;13(1):e064741. Read paper
  • Breaking bad news in a cross-language context: A qualitative study to develop a set of culturally and linguistically appropriate phrases and techniques with Zulu speaking cancer patients. Patient Educ Couns. 2022 Jul;105(7):2081-2088.  Read paper
  • Illness Understanding and End-of-Life Care Communication and Preferences for Patients With Advanced Cancer in South Africa. J Glob Oncol. 2018 Sep;4:1-9. Read paper
Ethics 
  • Ethics and Palliative Care. Continuing Medical Education, [S.l.], v. 29, n. 7, p. 274-276, jul. 2011. Read article
Spiritual care
  • Spiritual Care, Pain Reduction, and Preferred Place of Death Among Advanced Cancer Patients in Soweto, South Africa. J Pain Symptom Manage. 2020 Jul;60(1):37-47. Read paper
Cost of palliative care in South Africa
  • A hospital-based palliative care service for patients with advanced organ failure in sub-Saharan Africa reduces admissions and increases home death rates. J Pain Symptom Manage. 2014 Apr;47(4):786-92. Read paper
  • The profile and cost of end-of-life care in South Africa – the medical schemes’ experience. Master Thesis. Botha, P. 2020. University of Cape Town. Read paper
Research
  • Palliative care research in southern and central Africa. European Journal of Palliative Care. 2013 Jan 1;20(5):242-7. Read paper
Other
  • A Prospective Cohort Study of Factors Associated With Place of Death Among Patients With Late-Stage Cancer in Southern Africa, Journal of Pain and Symptom Management, Volume 57, Issue 5, 2019, Pages 923-932. Read paper
  • Informal Caregiver Challenges for Advanced Cancer Patients During End-of-Life Care in Johannesburg, South Africa and Distinctions Based on Place of Death. J Pain Symptom Manage. 2018 Jul;56(1):98-106. Read paper

Doctoral and Master theses

International publications

Dementia care
White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care. Palliat Med. 2014 Mar;28(3):197-209. Read paper
Dying with dementia-how can we improve the care and support of patients and their families. Ann Palliat Med. 2017 Oct;6(4):306-309. Read paper
 
Palliative sedation

Revised European Association for Palliative Care (EAPC) recommended framework on palliative sedation: An international Delphi study. Palliat Med. 2024 Feb;38(2):213-228.  Read paper 

Professional development

How palliative care professionals develop coping competence through their career: A grounded theory. Palliat Med. 2024 Feb 21:2692163241229961. Read paper

The economics of palliative care 

Evidence-based planning and costing palliative care services for children: novel multi-method epidemiological and economic exemplar. BMC Palliat Care. 2013 Apr 25;12(1):18. Read paper

Communities and palliative care

Allan Kellehear, Compassionate communities: end-of-life care as everyone’s responsibility, QJM: An International Journal of Medicine, Volume 106, Issue 12, December 2013, Pages 1071–1075 Read paper

Occupational therapy and palliative care

International consensus on occupational therapy interventions for people with palliative care needs: A European Association for Palliative Care Group Concept Mapping study. Palliat Med. 2023 Oct;37(9):1389-1401. Read paper